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TABLE 1: TRAQ SCORES IN ADULTS WITH NEUROGENIC BLADDER
TRAQ Domain 1: Skills for Chronic Condition Self-Management
Mean
Do you take meds correctly and on your own?
4.24
Do you use and take care of medical equipment/supplies?
3.85
Do you reorder meds before they run out?
3.32
Do you fill a prescription if you need to?
3.29
Do you know the side effects of each med and what to do if you have a bad reaction?
3.03
Do you call suppliers when there is a problem with the equipment?
2.89
Do you call the doctor's office to make an appointment?
2.83
Do you arrange for your ride to medical appointments?
2.83
Do you order medical equipment before they run out?
2.82
Do you call the doctor about changes in your health?
2.71
Do you manage your money and household expenses?
2.69
Do you know what your health insurance covers?
2.65
Do you follow up on referral for tests, checkups, or labs?
2.56
Do you pay/arrange payments for your meds?
2.17
Do you apply for health insurance if you lose your coverage?
2.15
Do you arrange payment for the medical equipment and supplies?
2.06
TRAQ Domain 2: Skills for Self-Advocacy and Health Care Utilization
Mean
Do you answer questions that are asked by the doctor/nurse?
4.20
Do you tell the doctor/nurse what you are feeling?
4.14
Do you keep home/room clean or clean up after meals?
4.03
Do you ask questions of the doctor/nurse?
3.89
Do you use neighborhood stores and services?
3.83
Do you fill out the medical history form with your list of allergies?
3.43
Do you help plan or prepare meals/food?
3.14
Do you keep a calendar or medical and other appointments?
3.12
Do you request and get the accommodations/support you need at school/work?
2.97
Do you apply for a job/work/vocation services?
2.71
Do you get financial help with school or work?
2.24
Do you call on and use community support/advocacy services when you need them?
2.20
Do you make a list of questions before a doctor visit?
1.85
CONCLUSIONS
Young adults with neurogenic bladder needed the most guidance during transition to independent care with
management of health insurance and finances. Based on these findings we now include dedicated social worker and
nurse visits in the transition process.