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THE INTRODUCTION OF A CLINICAL NURSE SPECIALIST (CNS) TO SUPPORT
YOUNG ONSET UROLGOY (YOU) PATIENTS
Winifred NUGENT
1
, Arash TAGHIZADEH
2
, Jonathon OLSBURGH
3
and Claire TAYLOR
4
1) Guys and St Thomas NHS Hospital Trust, Evelina London Paediatric Urology, London, UNITED KINGDOM - 2) Guys
and St Thomas Hospital and Evelina London., Paediatric Urologist, London, UNITED KINGDOM - 3) Guys and St Thomas
Hospital Trust, Urology and Renal, London, UNITED KINGDOM - 4) Guys and St Thomas Hospital Trust, Urology, London,
UNITED KINGDOM
PURPOSE
There is growing recognition that young people with long-term urological conditions need specific support which can be
provided by a Clinical Nurse Specialist (CNS). The Young Onset Urology (YOU) service is for adults who have had
complex urological problems. It recieves patients who are making transition from paediatric services as well as direct
referrals. We describe our experience to raise awareness of this patient group.
MATERIAL AND METHODS
We have analysed the role of the CNS in our YOU clinic focussing on achievements and contribution to the development
of the service. A patient survey was also performed to investigate user needs and feedback.
RESULTS
• Patient satisfaction survey revealed 90% of patients found the service good /very good; results were used to
benchmark and inform development
• Agreed patient pathways and follow up protocols
• Introduction of monthly Functional Urology MDT meetings
• Development of patient database tracking demographics, clinic attendance and clinical information
• Improvment in preparation of paediatric patients resulting in 93% of young people reporting feeling prepared for
transition
• Provision of patient advocacy/key worker support in multidisciplinary clinics
• Establishment of CNS led review clinics in paediatrics and adult services
• CNS led non-video and CNS/Consultant led videourodynamics providing holistic and individualised patient care
CONCLUSIONS
A CNS service can improve the experience of YOU patients by streamlining the pathway, providing clinical expertise and
successfully preparing young people for transition with high levels of patient satisfaction. A repeat patient survey will aid
analysis of patient experience and need, in order to influence ongoing service development