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S26-18
(P)
QUALITY OF LIFE IN BLADDER EXSTROPHY-EPISPADIAS IN FEMALE PATIENTS
Clara CENTENO, Esteban EMILIANI, Anna BUJONS, Marco SOBRON, Jorge CAFFARATTI and Humberto VILLAVICENCIO
Fundacio Puigvert, Pediatric Urology, Barcelona, SPAIN
PURPOSE
The aim of this study is to examine the quality-of-life (QoL) , urinary continence, sexual function and overall health in a
long term series of female patients with bladder exstrophy-epispadias complex.
MATERIAL AND METHODS
A retrospective review of 33 female patients with bladder exstrophy-epispadias complex born between 1964 and 1996
was preformed. The patients were asked to complete four validated questionnaires to evaluate their QoL regarding
urinary continence and sexual activity (ICIQ, Potenziani-14 and PISQ-12 questionnaires). The overall QoL was assessed
with the SF 36 questionnaire. Demographics were evaluated. Statistical analysis was preformed to compare the general
QoL to the general population.
RESULTS
Median age of our patients was 26 years (range 18-50). 30% of patients had urinary incontinence at the ICIQ with a low
to moderate repercussion on their QoL. 84% had active sexual lives with a moderate to severe repercussion due to the
urinary incontinence. 12 patients got married with 8 gestations and 5 births. SF-36 reported general QoL comparable
with the geneal population in 5 out of 8 items. Differences were seen in the mental health, emotional role and physical
functioning items (p=0.005) the main factors for those differences were the poor body image, anxiety and the urinary
incontinence. 70% presented a satisfactory social life.
CONCLUSIONS
Female patients with bladder exstrophy-epispadias complex reported a normal QoL in 5 of 8 items in the SF-36
questionnaire. Urinary incontinence was the main factor for the moderately decreased QoL according to specific
questionnaires. 70% had a satisfactory social life.