Abstract Book - 26th ESPU Congress, Joint Meeting with ICCS + SPU + AAP/SOU + AAPU + SFU

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S26-20 (P)
SEXUAL FUNCTION IN FEMALES WITH EXSTROPHY-EPISPADIAS COMPLEX - A
SURVEY OF THE GERMAN CURE-NET
Anne-Karoline EBERT1, Theresa LANGE2, Heiko REUTTER 3, Ekkehart JENETZKY4, Raimund STEIN5, Thomas BOEMERS6,
Peter REIFFERSCHEID7, Karin HIRSCH8, Wolfgang RÖSCH9 and Nadine ZWINK10
1) University of Ulm, Department of Urology and Pediatric Urology, Ulm, GERMANY - 2) Halle, GERMANY - 3) University
of Bonn, Institute of Human Genetics; Department of Neonatology, Childrens' Hospital, Bonn, GERMANY - 4) German
Cancer Research Center; Johannes-Gutenberg University; Hospital for Ped Neurology&Social Ped, Div of Clin
Epidemiology&Aging Research; Depart of Child&Adolescent Psychiatry; Child Center Maulbro, Heidelberg, Mainz,
Maulbronn, GERMANY - 5) University of Mainz, Medical School, Division of Pediatric Urology, Mainz, GERMANY - 6)
University Hospital Cologne, Department of Pediatric Surgery and Urology, Cologne, GERMANY - 7) Westküstenklinikum
Heide, Departmet of Child and Adolescent Medicine, Heide, GERMANY - 8) University Hospital Erlangen, Department of
Pediatric Urology, Erlangen, GERMANY - 9) University Medical Center Regensburg, Department of Pediatric Urology,
Regensburg, GERMANY - 10) German Cancer Research Center, Division of Clinical Epidemiology and Aging Research,
Heidelberg, GERMANY
PURPOSE
Few data are available referring to sexual function in female patients with exstrophy-epispadias complex (EEC). To
investigate this, data of adult female patients of the German multicenter network for congenital uro-rectal
malformations (CURE-Net) were assessed.
MATERIAL AND METHODS
61 adult females (≥18 years) recruited by CURE-Net between 2009 and 2012 were contacted and asked to fill out two
questionnaires, one about their current sexual life and the other one about medical data like malformation classification,
operation procedures, relationship status and child wish/previous pregnancies. Sexual function was assessed using the
validated German version of the Female Sexual Function Index (FSFI).
RESULTS
20 females (33%) filled out both questionnaires (median age 28 years, IQR 23-30 years). The majority of them lived in
a committed partnership (60%). 55% had a classical bladder exstrophy. 65% had regularly sexual intercourse, further
20% less frequently and with pain. Introitus plasty was done in 45%. 40% were reconstructed with primary or
secondary urinary diversion, further 40% were reconstructed in a staged or single-staged approach with their bladder in
place. Mean total FSFI for all participants was 22.3 (IQR 11.5-32.6). Mean individual domain scores were each 3.81 in
desire and arousal, 4.16 in lubrication, 3.50 in orgasm, 3.28 in satisfaction and 3.70 in pain. Comparison of mean
individual domain scores between the two operations approaches were similar with a slightly higher trend to a better
sexual function for those reconstructed with primary or secondary urinary diversion.
CONCLUSIONS
Most of the participants lived in a committed partnership and had regularly sexual intercourse. However, moderate FSFI
values show a need in improving sexual function and thereby quality of life.